Merritt's Movement...

Eight years ago we were blessed to become the parents of this amazing little lady. As the years wore on, we began to realize that Merritt was developing at a pace all her own. After many scary days and hospital stays, we learned that Merritt was missing a large part of her genetic code. Large = bigger than has ever been recorded before... We knew Merritt was amazing from the moment we met her but never could have realized how amazing she was. 

The Merritt Movement was born shortly after one of Merritt's multiple EEG stays at Helen DeVos Childrens Hospital in Grand Rapids, MI. We quickly learned that her studies and tests were imperative for her but these didn't happen to be free of charge either. What originally started as a way for family members to wear their support of Merritt expanded in ways we could have never imagined. It has reached all corners of the United States and traveled past international borders in a number of countries worldwide. We have been absolutely stunned at the support and outpouring of love this world has shown Merritt. So much so, that she has afforded others the opportunity to benefit from her continuous smile and upbeat attitude and provide financial contribution to Rare Disease and Global Genes foundations. Your donation and desire to take up the 'movement' directly contributes to those parties.

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  • Autism | A Link in the Chain

    Autism | A Link in the Chain

    Jordan Smith

    Perhaps the most colorful and beautiful link in Merritt's diagnosis 'chain' is her Autism diagnosis. Honestly, as ridiculous as it sounds to us now, we were terrified of to receive...

    Autism | A Link in the Chain

    Jordan Smith

    Perhaps the most colorful and beautiful link in Merritt's diagnosis 'chain' is her Autism diagnosis. Honestly, as ridiculous as it sounds to us now, we were terrified of to receive...

  • Epilepsy | Shaping Our Future

    Epilepsy | Shaping Our Future

    Jordan Smith

    With so many variations between patients and their individual episodes, the world of epilepsy can be confusing, lonely and dangerous

    Epilepsy | Shaping Our Future

    Jordan Smith

    With so many variations between patients and their individual episodes, the world of epilepsy can be confusing, lonely and dangerous

  • Genetic Deletion | 9q21

    Genetic Deletion | 9q21

    Jordan Smith

    This was truly our jumping-off point into the vast world of Merritt's mystery. A chromosomal deletion previously marked in medical history, but not quite in this fashion.

    Genetic Deletion | 9q21

    Jordan Smith

    This was truly our jumping-off point into the vast world of Merritt's mystery. A chromosomal deletion previously marked in medical history, but not quite in this fashion.

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Have a similar story? We'd love to hear about your journey.